Looking for support and information on dealing with arhinia AKA arrhinia or related conditions.... I formed a group on Facebook called Arrhinia and other Rare Conditions involving the Nose at https://www.facebook.com/groups/536799623068278/ You must be a member of Facebook to join the group. It is a closed group.
You can also send me a friend request at Facebook to see what it is like to be an adult with arhinia AKA arrhinia.... I live a pretty ordinary life. :) Here's a link to my Facebook profile at https://www.facebook.com/kristilbranstetter
You can also follow me on Twitter.... Just look for Kristi Branstetter there!